Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Wednesday, August 12, 2015

There have been some changes...


I must apologize for neglecting this blog, and my faithful readers.

I have been focused on a new project - one more centered on the main passions in my life - adventure motorcycle riding and travel.

My friend James decided, about a month ago, to learn a new skill-set. He decided that he wanted to become well versed in the art of website design and development, and subsequently asked if he could use me, and my adventures, as his first project.

Well, I can tell you that the results are nothing short of amazing.

James has created a website for me, http://advjoe.ca/ that is so much more than just a place for me to host my blog.

With James' know-how (and very quickly broadening skill-set) and my passion for writing, this new website is growing into a wonderful new project write before my eyes. (did you catch that-  pretty smooth, huh?)

There are product reviews, posts about my adventures, photos, links to adventure-motorcycle related media and events, and much, much more is yet to come.

But where does that leave my first born, this blog that allowed me - no, invited me, to delve into the arena of writing for readership?

Not to worry. What I've Learned Along The Way will continue to be the place where I post from my heart.

My more personal, close-to-home-and-heart writings about my life, my love's and my continued rambunctious journey through this wonderful second-chance-at-life will be hosted right here, right where they belong.


I will get back to writing more about addiction, and the recovery there-from, and the beauty that resides in an awakening.

My motorcycle-related writings, however, will live in a larger, more welcoming new home that has been designed and built around them, and for them.

I hope that you find something of interest in both places, and will do my best to give you just that.

So thank you, for your continued patience. I invite you now to come along, join me in this adventure that is life. . .

Wednesday, March 12, 2014

It’s been awhile…


I have been away for quite sometime.

Hmmmm…

There was a time when that meant one thing, and one thing only.

Thankfully, that is no longer the case. Being arrested, locked up, in custody, in jail, going to court, facing remand, pleading my case….

All things that I remember well. And I remain grateful that today, they are not part of my life.

I am also grateful – believe it or not – that they once were a part of my daily existence. The chaos. The uncertainty. The unbelievable amounts of stress. The pain, and heartache. The darkness.

For they all helped to bring me to where I am today. To shape the man that I am now, and the man that I will become tomorrow. To provide perspective. Contrast. Point of view.

I am looking out of the window of my apartment in Vanier, lamenting the mid-March blizzard that has befallen us. Pining for the warmer weather, the melting of the snow, the cleansing rains of spring – all so that I may once again climb into the saddle of my iron steed and commence yet another season of travels, explorations and discoveries.

God I miss my bike.

Yet neither of these two facets of my life are what brought me back to the keyboard.

No. What brought me back to writing this blog is love.

And my absolute joy about being free to accept it. And to give it. To feel it, and acknowledge it. To learn of it, and grow with it.

Susie brought me back to you, my friends and fellow travelers.

You remember Susie. I introduced you to her on May 30 of 2012, just as I was preparing to head off on my Epic Motorcycle Adventure to the Rockies.

During that trip out west, I made a lot of discoveries. About myself and my life. About travelling the open road. About how infinitesimally small we are in the great big scheme of things. About the things that are important to me. About what friendship means to me.

And it was on that trip that I came to realize that I loved this woman.

Susie underwent 39 chemotherapy sessions between May of 2012 and December of 2013.

In December she was told that the chemo was no longer working.

This is the type of news that can, and often does precede the quick downturn and eventual death of stage 4 cancer victims.

Thankfully, Susie has never considered herself a victim. Nor have any of those who surrounded her and buoyed her through these last 2 years.

Susie and I became very close during this time. I expressed my love, Susie smiled and gave me the ‘I am flattered, but…’, and a friendship began to blossom that is quite unlike any that I have had before.
There is a great amount of information available espousing the undeniable benefits of laughter. And the healing power of love.

Susie and I have shared an inordinate amount of time engaged in belly-clenching, tears-streaming, gut-rolling laughter. And she has been surrounded by love every day. From her parents, her brothers and sister, her cousins, her boyfriend, her aunts and uncles, nieces and nephews – just an incredible number of people took the time to make sure that she knew – and knows – that she is loved.

On Friday, February 28, 2014 Susie underwent 9 hours of surgery.

Surgery that at least one surgeon tried to talk her out of. Because it was, in that surgeon’s words – a waste of time. Because Susie was certain to be filled with cancer – both old and new. According to the surgeon.
We protested. We invited the surgeon to consider quality of life aspects that may have been overlooked.

Having been told that chemo was no longer working, quality of life was Susie’s focus.

Several weeks and 9 hours of surgery later, that same surgeon came to address the family members who were present, as well as Susie’s boyfriend Mike and myself.

And the surgeon looked at each of us. Smiled. And said “it is really quite a miracle, actually.”

It seems that they found no disease, only scar tissue.

Susie’s stage 4 colon cancer – which at one point had metastasized and spread to her lung, liver, abdomen, lymph nodes and ovary – was no where to be seen.

Through 39 chemotherapy sessions this woman kept telling everyone that she was going to be fine.
Through more than half a dozen CT scans. Countless blood tests. Twice weekly visits to the Ottawa Integrative Cancer Center. Hair loss. Weight gain. The never-quite-gone looming darkness and fear of the disease.

Through all of it Susie kept her smile. Shared her laughter. Loved and received love.
There is an undeniable and incredible healing power that comes from within all of us and that is all of us. It is the one thing that can connect us to all that is and all that ever was. For thousands of years we have tried to ascribe ethereal identities and nomenclature to it. We have written rules to be abided by and oaths to be given. We have taught and been taught that it is a power to be deigned upon the deserving. The worthy. The righteous.

It is the power of love.

It is free. Just open your heart.

I discovered on my trip out west in 2012 that I was capable of loving another person as I do myself.
The greatest gift that I have ever received.

Matched very recently by a team of surgeons who said “she is doing great. It looks like she is going to be fine”

“I have always known in my heart that I was going to be okay” Susie said just the other day.

None of us is certain of what tomorrow holds. But today brought the promise of a tomorrow.
That is more than enough.

You are undeniably the strongest person that I have ever met Susie.
I love you. And am so very grateful to have you in my life.
Joe E.

Saturday, October 12, 2013

Best Laid Plans, Really Great Roads…and Thanksgiving


I had a plan.

Really.

I did. I formulated it almost two weeks ago.

For the Thanksgiving long weekend, I decided that I was going to go on one last long-distance motorcycle adventure before the season rolled to a stop….drew to a close….came to an end….

You get the picture.

I have not yet gone on a long distance ride in an easterly direction. So, naturally, I decided that I was going to ride to Gaspe. And to the Bay of Fundy. And back. In three days.

I wisely booked the Friday of the long weekend off, allowing me to be back home on Sunday evening, and giving me a full day of rest on Monday before returning to work on Tuesday morning.

I planned on leaving early on Friday morning, and riding all the way to Gaspe – or as close as I could make it – before once again – and for a final time this year – setting up my Hennessy Hammock and sleeping in the great outdoors. I would then spend Saturday touring the area, getting side tracked at every available opportunity, and eventually begin the ride home either late Saturday afternoon, or early on Sunday morning.

The weather forecast, when I originally dreamed up this cockamamie scheme, was lousy. Rain, and highs of 7 or 8 degrees were what I could expect, according to the most maligned of public whipping-posts, the weather forecasters, of two weeks ago.

I was not to be swayed. Every time that a friend or colleague asked me what my plans were for the long weekend, my reply was a grin, and ‘riding to Gaspe – you?’

A ‘good lord’, and a shake of the head was the response that I most often received.

I think that a good many people may perceive me to be slightly crazy.

And that’s okay. Kind of gives me a little leeway to, well, be a little crazy.

The weather forecast, as you are not doubt very well aware, changed. As it sometimes does. And quite drastically, too. Highs of 20, 21, and 23 degrees. And lots of sunshine.

Thank you, oh wise weather sage, for being so wonderfully, beautifully wrong.

So. A good plan. A researched route. Likely fuel and food stops laid out. Weather that was too nice to even wish for. A finely tuned and eager steel steed with a freshly changed oil and filter.

Why, then, are you reading this now? As early as Saturday night?
“He must be blogging from his phone”.
“He decided to bring his laptop and is sitting in a Tim Horton’s somewhere north and east of Quebec City”.
“He decided not to hammock-camp after all”.

No. Nope. And unh-uh.

As is so often true, and as Robert Burns so cleverly penned, the best laid schemes, of mice and men, often go awry…

And though my plans most certainly did change, I cannot say that I am disappointed. Nor left wanting. For I was needed here. To be a friend. And to offer company, distraction, humour and understanding. As the case may be.
You see, Susie continues to valiantly – and successfully – wage her battle against cancer. She has had 36 chemotherapy treatments. Yet she is still able to soldier on, wear a smile, offer a kind word, and quite nonchalantly tell you that she is going to be fine.
All the while, friends who are also suffering from this despicable disease are dying around her.
And so it was that Susie found out, early Friday morning, that she had lost yet another friend and fellow cancer-fighter on Thursday evening.

The Gaspe adventure became very unimportant, very quickly.

I spent all of Friday with Susie. Watching. Listening. Learning. And thanking God that I am able to be ‘that person’ for her.
By days end, we had joined with my other best friend – James – and headed off for that ultimate form of distraction – a Hollywood blockbuster and butter-soaked popcorn.
Tom Hanks does not do bad movies. And ‘Captain Phillips’ is on par with his best. An excellent film, full of tension, that keeps you interested right up until the closing credits.
It was a great end to a wonderful, though at times emotional and heavy day.

Driving home, I figured that I could still squeeze one heck of a long ride out of the long weekend. Maybe just not all the way to Gaspe.

How about Val D’Or?

Yeah. Why not? Seemed logical to me.

And then I received a phone call from another friend, sharing some of her recent good news and asking me what my plans were for Thanksgiving. To which I replied that I had no set plans, other than taking a nice long motorcycle ride.

At which point I was invited to Thanksgiving dinner. On Sunday. In Cornwall.

A pretty lady. Turkey. Stuffing. Need I say more.

Yes – I admit – I am shallow as a puddle at times
.
So I arise bright-eyed and bushy-tailed this morning, all set to head out on the road to Val D’Or – which, not coincidentally, happens to be the birth place of my father – and I started thinking about all that I have to be thankful for.

An hour later I was on my bike, heading to Chesterville, to be with my mom.

I stayed through lunch, repeatedly bugging mom to eat a little more of this, or finish the last two bites of that, living my childhood all over again, yet in reverse, and realized that this was always going to be part of my Thanksgiving weekend. Even when I did not yet know it.
We had a great visit – and I am going to do something for which I will likely get a smack – and post a pic of my beautiful mom, right…..
….here.MomI love you mom.

As you have already gathered – my riding plans changed yet again. And this time, I got smart. I did what has always worked for me in the past.
I made no plan. Picked no destination. Checked no maps.
I just filled up the tank, and followed my front tire, allowing the bike, and whimsy, to take me on the adventure that I was meant to ride.

And oh, what a ride it was.

I headed across the river, into Quebec, and followed the 50 to Montee Paiement. I had not travelled this route yet this year, and Montee Paiement always brought a smile to my face and a twist to my wrist last year, so off I went, scooting along her curves, over her hills and through her valleys.

This is a route that is definitely not for the faint-of-heart, or brand-new-to-riding type of motorcycle rider. The asphalt is old and cracked. There are potholes. And bumps. And lots of road-snakes. But man oh man what a ride. Montee Paiement ends at the 366 – a route that I absolutely love, and have written about prior – so it was with a smile from ear to ear, full of anticipation, that I swung left and headed north on Route du Carrefour. The asphalt is smooth. The curves are frequent, but not overly technical, and the hills come at you like whoop-de-doo’s on a motocross track. Add in the blazing colors of the fall foliage, the just perfect temperatures and the warm golden glow of the autumn sunshine and you will begin to understand how easy it is to lose yourself, becoming one with your machine and the road and all that surrounds you, dancing the beautiful dance.

In no time at all I was at the 366 / 307 junction. And this time, instead of heading south on the 307 as I usually do, I headed north yet again. On a route that I had only been on once before. The 307 north, Route Principale, is another wonderful motorcycle road. It will challenge even the most seasoned of riders, and the scenery through which the ride takes place is breathtaking. The one and only time that I had been on this route previously had been during a group ride to Paltimore earlier this season. I vaguely remembered some of the sights along the way, and vividly remembered some of the pucker-inducing curves – yee haaaa!!!
I rode on past Paltimore, all the way up to Val-Des-Bois, stopping intermittently to snap a few pictures, and feeling absolutely at peace again. At Val-Des-Bois I crossed the steel trestle bridge and opted to ride the 309 back down to Gatineau. Which turned out to be a perfect choice, as the 309 is every bit as scenic as the 366 – 307 run is, yet it is far less challenging. The curves are long and sweeping, and the hills are likewise long and shallow, as opposed to the staggered hairpins that are the order of the day on the 307.

I highly recommend this route to everyone who rides. If you love riding your machine and challenging the road, the bike and yourself, then the 366 north to the 307 north to Val-Des-Bois is a must ride. And if you really like ‘em twisty and hilly, get off the 50 at exit 145 and ride Montee Paiement to the 366. You will not be sorry.

In the end, I only racked up about 350 kms – including the ride to see mom – but as it turned out, it was exactly the ride that I needed.

As I am often apt-to-do, I snapped quite a few pictures along the way. Most can be seen right HERE if you are interested.

Now, I have to make my dinner. Pulled pork sandwiches. Home made baked beans (thanks Al). Cole slaw. And bakery apple pie.

That and Netflix sounds like a perfect end to an amazing day.

Oh, and one more thing.

Fuck cancer!

Thanks for riding along,…

Monday, August 20, 2012

So how was your day?

 

Just about everything can be categorized. Quantified. Evaluated and valued.

Placed into one column or another.

Even good news.

I mean, if your dentist tells you that you have no cavities, well, that is good news.

Your 10 year olds’ teacher gives you no reason to regret having kids – good news.

Your 16 year old daughter really did simply miss her period – good news.

The car salesman really was able to swing you a deal – good news.

You got that long awaited – or better yet – unexpected raise at work – good news.

Each of you probably has a different order of importance to these ‘good news’ items.

Then there is that whole other column. You know, the one were we try to imagine the feeling of “you won the 6/49” kind of good news.

When an Oncologist walks into an interview room smiling.

Yeah – that kind of good news.

I went with Susie to see her Oncologist this morning. I am not even the one fighting cancer and yet I was almost crying with joy over ‘good news’.

It seems that this woman whom I stand in awe before – this woman who can cause me to wonder at her incredible fortitude – this woman whom I love – has a big, brightly shining light at the end of her proverbial tunnel.

Some good news is just better than others.

We spent the rest of the day enjoying each others company. Sharing good food. Shopping for the pure pleasure of buying something nice.

Laughing. And both, in our own, unspoken way, being grateful.

……..and that’s not all………

It has been a week of good news.

I stopped in to see my sister on Wednesday. I wanted to drop off a birthday card and gift for my mom, and touch base to get the latest update on the less-than-enjoyable current family situation that I mentioned in my last post.

Well. Wonder of wonders. As easy as that, my parents have decided that the best ‘next step’ is for them to move into an assisted living residence.

Okay. Maybe not quite as easy as that. Maybe a little more along the lines of mom saying something like “I don’t know what you are planning, but I am going – I want this”, and dad realizing that his life-long partner meant what she was saying. So dad decided that he, too, is going to move.

Of course, if I had to guess, I would bet that to hear dad tell it, this was his idea all along.

Yes dad. Of course it was.

You may think that it is wrong, selfish, inappropriate for a son to be happy that his parents are moving into an assisted living residence. I assure you that this is far and away the best outcome. For mom. For dad. For my sister, who has placed her life on hold for the last 3 years to take care of my dad as he has progressively weakened.

It is sad. It is not easy. But it is most definitely for the best. And therefore it’s very own kind of ‘good news’.

And then there is Mona. My dear, fucked up, confused, scared friend Mona.

Mona is doing alright.

She doesn’t believe it yet. There are still too many unknowns. Too many possible bad outcomes. Too many things to fear. Too many reasons to have to count on others. Too possibly be let down.

Too little faith in herself.

But that is changing. Slowly, Mona is stretching.

“I know I have to start taking charge of my life, and soon” were the words written to me in a text this morning.

This, my friends, is what is known as a starting point. On the ‘wheel of change’ this is referred to as the contemplative stage.

It is also the beginnings of faith.

God bless you Mona. I love you hon – and will be there to help – or kick you in the ass – whichever the case may be.

I have been blessed in so many ways. A job that I love, which in truth is like being paid to do service work; a family that, screwed up as it is, is still able to make it through the shitty stuff without trying to tear each others throats out. And friends who are there for me, and who know that I am there for them.

It is an honour for me to know that I can be counted on. By me. And by others.

 

Wow. What a Monday, huh?

Monday, August 6, 2012

Up’s, down’s….and twisties!

 

I purposely stayed off the blog last week. Just to step back for a minute. Collect my thoughts. And decide just how personal and revealing it needs, or should be.

Still haven’t come up with an answer. So…..

Here we go.

I introduced you to my friend Mona the last time that I wrote. Things are pretty shitty for her right now. That is generally a given for us when we are active in our addictions and wanting to change.

It is not easy. As a matter of fact, it is really, really tough. I mean, imagine for a second, if you will, that someone has told you that the only way that your situation is likely to improve is for you to cut ties with virtually everyone who is currently a part of your life.

All of the people that you associate with on a daily basis – gone.

The people that you have convinced yourself are the only one’s who understand you – that you have come to call friends. Family. Lovers.

History.

The people that you KNOW, and that KNOW you – you have to say goodbye.

Could you do it?

Those of us who have spent our lives in the ever-darkening hell of active addiction generally have no choice but to do so. If we are to have even the barest of chances at survival and then growth into a new-found way of life, we must leave our old lives behind.

Separation anxiety, anyone? You’re damned right there is.

And that is where my friend is now. In the purgatory of desperately wanting to change, yet being stuck in the comfort of the familiar.

Having difficulty understanding this idea. Well consider this.

We are generally only afraid of the unknown. Of that which we do not yet understand. It is why the dark frightens most of us. Because we have no idea what lies in wait, with sharpened claws and dripping teeth, to cause us unbearable pain and torment.

Turn on a light – erase the shadows – show us that the path is clear and safe – and we are once again our happy-go-lucky selves, chuckling with bravado at our momentary lack of reason.

Well, my friends, the idea of recovering from a life-long addiction to drugs, and the associated lifestyles that go with it, often is that darkest of dark places. Because a life without drugs; without booze; without criminal behaviours and constant scamming - that is something that, for people like my friend Mona, and myself not so many years ago, is completely unknown. Something that we are not capable of understanding. Something that is very frightening. Precisely because we do not understand it.

Yet.

So my friend Mona is scared.

And that brings us to my current predicament.

You see, I have that understanding now. I have clawed my way from darkness and despair and I know first hand that it is all possible.

There was a time in my life – most of my life, actually – when I knew, just knew in my heart, that I could never have a ‘normal’ life. That I never would have peace. Quiet. Serenity. Happiness.

Everything that I knew, in the most tightly woven fibres of my being, that I could never have, I have since come to know and experience on a daily basis.

Every good thing that every other person had in their life – I now have in mine.

And I really want to help Mona to see this. To feel this. To believe this. To KNOW this.

I want her to trust that everything will be okay.

But my heart is involved here.I really care about this woman. So I have to ask myself – am I able to be selfless. To stay one step removed. To not fall further for her than I already have over the 14 years that we have known each other.

I don’t know.

And that is kind of scary.

I love you Mona. And I will do what I can. That much I can promise.

In other news………………

My dad is not doing well. He was in the hospital again last week. A fractured elbow suffered after yet another fall – this one resulting in him being found unconscious on the floor.

My brothers and sister and I are discussing next steps. It isn’t easy. Or pleasant.

On the up-side of things, though – Susie is doing really well. I mean, aside from the dozens of mosquito bites that she suffered last week, that continue to drive her out of her mind with their itchiness. Aside from that, things are good for Susie. No more fevers. No more unscheduled trips to the emergency room.

Wait a minute. Is a trip to the emergency room ever scheduled? No, I guess not.

Anyway, the point is that she continues to keep her chin held high, to laugh out loud, and to live life as fully as her situation allows. How could I not love this woman?

I am so proud of you Susie. Crazy about you too, but that is my issue, lol.

Finally, I have become the subject of an amateur photographer friend of mine. He has been experimenting with lenses, lighting and content over the past little while, and recently he snapped off a few of me and my bike.

I have to say, I am pretty happy with the results.

 

OLYMPUS DIGITAL CAMERA

This picture comes pretty close to capturing the moment. And the magic.

You have to dance with the road – riding her curves – boogying through her twisties – to really get it. But this is pretty darned close.

I will post again next week. Or as the subject matter develops.

Be good to each other. And get out and RIDE!

Monday, July 23, 2012

Love. Life and death.


It has been a week that has left me weak.

A tough, kick-in-the-thigh-to-bring-me-to-my-knee type of week.

On Tuesday afternoon I was given the news that a friend and fellow rider had been killed earlier that morning. A single vehicle accident, he died doing something that he loved -  riding his motorcycle, and I like to believe that he was smiling from ear to ear, enjoying the cool morning air as it whipped past him, right up until the moment that tragedy reared it’s irrevocable head in a moment that cost the world a beautiful soul, that leaves our riding club with tears in our eyes, lumps in our throats, and a- chuckle-of-a-memory at times that we were blessed to share with a wonderful man.

Rest in peace, Swapnil. And find some twisties to show me when I get there brother.

There was to be a memorial of sorts at our weekly meet and greet this evening. I do not know how it went. I was not there.

I could not spend anymore time, or energy, around death today.

I spent all day with two different woman, each engaged in their own very personal battles to stave off that dark shadow.

Two woman whom I am honoured to call friend. Women that I love very, very much. Who each, in their own way, compliment my life in a manner that I could not have imagined possible a few short years ago.

Before i began to understand what it means to truly love another.

I used to think that love was dependant upon reciprocation.
I became free when I learned the truth. That love depends only upon the ability of one individual to connect with another. And I have been blessed with an ability to connect with people. And so, to love.

I have mentioned my friend Susie in a few previous posts. I have written of her current battle with the big ‘C’.

I have told you that I love her.

God I wish that were enough. I wish that the love that I have for this woman was enough to take away her fear.

Enough to bring her solace.

Enough to make everything okay.

But life is not that simple, is it? No. Not by a long shot.

Susie was in emerg twice over the last 5 days. A simple infection – something you or I would not give much thought to, in normal circumstances – poses a threat. And strikes a chord of fear.

I fucking hate this disease. And I know, so don’t you dare tell me to be happy it is not me. The truth is, I would trade places with Susie in less than a heartbeat if I could.

All that I can do, however, is to be there for her.

 And be there I will.

 For that is what love does.

I love you Susie.

I have not mentioned my other friend before today. And in truth I cannot say much yet, as I don’t yet know how much she will be comfortable with me writing about in my blog.

But I can tell you a little of what is going on.

After 30+ years, she has had enough. She cannot go on doing what she has been doing. She wants to change her life.

And she has reached out to me for a helping hand.

If you have never had a person whom you love come to you and ask you for help, then you can not possibly understand what a humbling experience it can be.

All the more so when you consider that at one time we were business partners, of a sort. Co-conspirators in the world of using and selling drugs. In the dealing of death. In the killing of ourselves. Slowly. And painfully.
Without the ability to care. Or to love. And barely even noticing life, all the while darkly wanting it to end.

 Somehow.

I have written about my moment of change. And my friends, I believe that this woman is there. I am excited – and even told her how excited I am – about the possibilities that lay before her.

About the life that she can have.

This is a story that I believe deserves to be told. And that you just may enjoy reading. So over the next few weeks, I am going to introduce you to my friend, this woman that I love. This soul who has reached out for help, and complimented me by asking me to grasp onto her outstretched hand.

For this moment.

I have grasped back. For that is what love does.

And I love you Mona.

I try to count my blessings on a regular basis. To keep me grounded. To keep me here, and now. To help keep me clean and sober.

These two women are blessings in my life. And I thank you God, for these, and all of the blessings in my life.

Good night fellow writers, readers and riders. And God Bless.